Gawking, wide eyes
To speculate why;
Pointing so rudely
While passing me by.
The curious staring
With puzzled foreheads
At oozing and swollen
Cheeks, puffy red.
Forced on an elevator
with a sweet, little boy...
Scared to get near me,
I felt so annoyed.
“Mommy, what happened?
What’s wrong with her face?”
I forced a sweet smile,
And asked God for grace.
Oh, butterfly rash
won’t you flutter away;
Take with you the cold
That turns my hands gray.
Home to my haven,
Finally to rest;
Exhausted and hurting,
But God knows what’s best.
Phone won’t stop ringing;
“Hello.. I’ll be late...
Enflamed, aching joints;
God wants me to wait....
I thought you understood
This chronic disease;
When healthy cells attack,
My life has to freeze.”
Effecting the body
In all different ways,
Flares can cause pain,
Severe, some days.
No longer in haste
Can I jump up and do;
Choices are made
Kept simple and few.
Pacing and planning,
No energy to waste;
Taking new medicine,
Out comes the moon-face.
“Honey, you’re home!
Why sad and depressed?
How was the school day
Be happy, you’re blessed.”
“Oh, Mommy, this boy....
So awful and mean,
Said you are fat
And caused a big scene!
I know it’s your medicine
That makes you gain weight;
At least you’re alive;
God is so great.”
“Some organs, so damaged,
Now healed from strong pills;
Let’s praise God together....
When empty, He fills!”
Whispers of gossip...
“She certainly can’t go
To slow us right down;
We must tell her, 'No!'
Emotions and loneliness,
Feeling left out;
Insensitive comments,
Pity and doubt.
The ups and the downs
That illness can give,
Drive me to Jesus
Who died, so I’d live.
Rich lessons I learn,
Refining as gold;
Promises savored,
Faith never old.
A gift sent from God,
His Sovereign plan placed;
Controlled by His hands,
To accept and not waste.
His presence draws near,
Our Hope all along;
His grace all sufficient,
When weak, we are strong.
We humans may gawk,
Say wrong words so bold;
But our best friend is Jesus,
His love’s never cold.
Tests become triumph,
Lupus, my gift;
Oh, butterfly linger,
I don’t want to drift!
To focus on Jesus,
His love, so secure;
The aches and the pains,
I’ll gladly endure.
The things of this world
Are temporary and pass;
But the things unseen,
Are eternal and last!
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